CF Scare

For the last month and a half, we have living with the scare that little man has cystic fibrosis effecting his pancreas.  Did you even know there was such a thing? I sure didn't!

It has been pretty scary.  CF means a life of illness, pain, and an early terrible death.  I haven't slept (not that little man would let me anyway), and have been sick with worry.

I was pretty ticked off to find out, when I called to schedule his testing, that the craptastic GI we saw before this new one, tested him for it, but didn't tell anyone, or put it in any notes.  A YEAR AGO! They found it in the notes from the lab.  I am upset that he didn't tell us that he already tested for it, or that he didn't have it.  I am greatly relieved that he does not have it.  The GI thinks he still has a pancreatic disease still, just one that is less terrible than CF. 

More to come on that...

In the mean time, no church til Spring, no Nursery for another year, he'll be on special formula only, for AT LEAST 6 more months (2nd birthday), but probably until he is 4, and he is now on 10, yes, 10 meds daily.  My poor little man!