Pancreas

This week had been overwhelming. Today has been overwhelming.  I have been taking Little Bear the chiropractor since last week.  I have heard really great things about babies with severe GERD and chiropractors, so I decided it was time to try it out.  I have seen a chiropractor for many years for severe migraines, and actually saw this same chiropractor when I was pregnant with Little  Bear to help with my pain from labor, and bed rest.  We'll see what happens.

He also had his follow up appointment with his GI last week. Apparently he also has severe food intolerance, yes, you read that right, food.  All food.  She also said his pancreas isn't working properly, and isn't producing either enough, or any enzymes to digest and process his food, and most importantly protein.  So, she put him on an eighth medicine. Yep, 8. So now he is on a live enzyme  made from bovine pancreas.  Gross I know.  I shudder every time I open the capsule, and put it in his applesauce. Oh, get this, the Children's Hospital Pharmacy (the only place in the state that can get most of his meds), will overnight me his medicine if they don't have it in the pharmacy.  So, Saturday, FedEx came and dropped it off.  The driver told me that it was the only package sent out that day, and said it cost $150 to deliver it 45 miles to my house.  Isn't that madness?!?!?!? I hope the insurance covers that sucker ;)

His formula ingredients changed and now have soy in them.  No wonder he is still having so many issues right? So I took him off his formula and put him on coconut milk.  He's been on it for 3 days now.  Not sure if it's making a difference or not.  It's been a hard, hard week.  His eczema has been terrible, and yesterday he got into some cereal with soy in it, and had a really bad reaction. 

My next goal is to learn how to make my own coconut milk.  It's supposed to be much more cost effective, and better for you than the processed stuff.  If it works out well, I'll post how it turned out :)

My little Munchie Moo has been having a hard time lately.  She can't leave my side, and has been very whiney, and throwing temper tantrums.  I have been trying to spend more one on one time with her and let her know how special she is to me.  She is currently sleeping on my legs, on the couch while I type.  I love her.  I just wish I didn't feel like I was failing her, failing everyone.  I hope she knows how much I love her. I hope she knows how much I need her, and how special she is to me.  The GI told her that she is the reason I am still sane.  She was so proud of herself for being such a big girl.  I love her.